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Commented on My Name is Veronica, Co-Founder of INR Tracker, and I have a blood clotting disorder. Ask me anything. almost 2 years ago

Hi Veronica, There are some similarities with our stories with atypical symptoms and even the same year. But there is a big difference - I was nearly asymptomatic. The only sign of my DVT was cramps at night in my calf that went away after a couple weeks. Thought I was low on electrolytes from working out. Even my GP couldn't find anything during my annual physical a few weeks later. Unfortunately, a couple days later I had a massive bi-lateral pulmonary embolism -- but again without the usual symptoms. Felt like the stomach flu. Finally, 6 days later when my shoulder (referred pain) and gut (it was the diaphragm) were in intense pain, I went to the ER. I had no shortness of breath or any other classic signs. The ER staff was amazing and recognized quickly that something was seriously wrong and got to work fast figuring it out. I guess having good insurance helps because the care I got at Cedar Sinai (ER) and UCLA (follow-up) was exceptional. I spent a week in the ICU with a bi-lateral PE and 6 months on Warfarin. My mom went on it the year before, so I was familiar with Coumadin. Turns out we have a genetic blood clotting disorder, but there isn't a test for the kind we have. My mom is a "Warfarin lifer", and like you, if I ever get a clot again, I'm told I will be too. That's my story but the reason I'm posting this comment is to say THANK YOU. I also work in digital and several times thought about creating a site like this. I even have a half drafted letter to the founder of Ideo, hoping they might take this on. I am so appreciative that you have done it. I think the food tracking feature is a game changer for people on Warfarin and I'm going to get my mom started with it tonight. Hopefully I will never need it, but it's reassuring to know this exists if I ever do. More importantly, I think it will help my mom a lot. You have done an enormous service with this site. I really want to see it succeed. If you ever need someone to bounce an idea off of or want some feedback on something, I have a ton of experience in digital, so please feel free to message me. Meanwhile, I'm going to shoot my doctor an email to let her know about it for her other patients on Warfarin. With deep gratitude and thanks. ~J


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