Flower orange  Bryce11 wrote over 3 years ago

From documentation on Coumadin from top Universities, your website is far better than anything that we were given! Thank you! My son was diagnosed with Left Ventricular Non Compaction Cardiomyopathy. He is 20 and this is all brand new (since Feb 207). He had a large blood clot in his heart and during his stay in the hospital, it broke loose and lodged in his kidney and spleen. We ended up in the hospital for 3 weeks. He is in the onset of heart failure from a genetic condition. His heart ejection fraction is 15% but because he is 20 and was born with this, you would never know! He was skiing in Colorado and running up to 4 miles on the treadmill just a few days before this all happened. Stomach pain brought him in to the hospital. It was fluid built up around his organs. With all of this, he had to drop out of college, come home on a life vest and is given 3 months to see if his heart can improve with some from the meds. I can handle the low sodium requirement but this Coumadin thing is killing me! I am trying to do all his cooking right now to alleviate some stress from him. I was only given a list of high, medium and low foods. I thought I could pick one high a day. After finding your site and starting my research, I now know the big swing from spinach to romaine, etc. I couldn't get the levels to stay in range and was having to give him the Lovanox shots. My husband recommended cutting all the highs out. It is against my way of eating but decided I would try to see if it would keep him more steady. It has worked. However, I am learning so much everyday, for instance, to get the vitamin K out of cooking oils, you can put in a clear container and put in the sunlight or florescent light for 48 hours and it removes 85% of the Vitamin K! Also, I found that coconut oil does not have all the vitamin K as oil such as olive oil. My question to you is, is there any way when I find food or things like coconut oil to get them added? This morning I made steel cut oatmeal with no salt and wanted to add it and there isn't an entry similar. What do you do in this situations or can you make an account and add items? Lastly, I am reading labels and looking for low sodium and looking items up to make sure I am not giving a lot of vitamin K but if I can't enter everything in the database, how would I know how much he is consuming? Thank you again for your website. I would be really lost without it.

Category: Blood Clots

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1966 shelby mustang  jerryol - (87) - posted over 3 years ago

I look up the main items I eat at https://ndb.nal.usda.gov/ndb/ . I see how much vitamin K in 100 grams of each item and copy it into an Excel spreadsheet. I mostly only keep track of greens and high K items. Then daily I weigh these greens or high K items that I eat with a kitchen scale that measures in grams. Record it and let Excel do the multiplication. For example: romaine lettuce is 102.5ug per 100grams. If I eat 20grams of romaine on a sandwich the math in Excel is: 20/100*102.5 = 20.5ug . On my dose of coumadin I try to eat about 80ug a day to stay between 2 & 3 INR. Of course you have to work out the right avg. ug amount for your son.

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