My INR went from 2.5 to 12 in one day!!!!
alx87017 wrote about 1 year ago
I am brand new to INR tracker, fairly new to managing warfarin, and very new to discussion boards. I had my first PE in June of 2016. I was told that it was probably due to birth control and was started on xarelto. One month later I was in the ICU with a GI bleed and it was a wait and see game. Things were under control in about a week, and 5 months later I was told I could stop the xarelto. January of 2017, I had a DVT in my right arm. I was told that I would be on a blood thinner again and was started back on xarelto. In March, I had another GI bleed. At that point it was decided that I should stop taking the blood thinner since the DVT had gotten significantly smaller. August of 2017, I was diagnosed with my 2nd PE and started on Eliquis since I failed on xarelto. After being on the Eliquis for a month,I had yet another GI bleed. I was then given lovenox for a month and an IVC filter was placed. At the beginning of October, I started coughing up blood. It didn't last too long since lovenox has such a short half life. Upon discharge it was decided that warfarin would be my best bet since there are reversal agents and I tend to bleed a lot. I finally got my INR to 2.5 and was taking 7.5mg of warfarin daily. The day after getting my INR checked and finding out it was 2.5, I fell while out with some friends. I thought it was better safe than sorry to get checked out. In the ER, my INR was 7.5. I was immediately given vitamin K and admitted to the hospital. The next morning, my INR was 12! They gave me some more vitamin K and FFP as I started to bleed vaginally (TMI, sorry) and throwing up bright red blood. We got things stable and my INR down to 1.1, at which point I threw another DVT in my left arm. The next morning, my right arm was swollen and red and my oxygen saturation was in the 80s. They found another PE and DVT in my right arm.
Here I am a week after this whole ordeal. I am terrified and frustrated. It seems like my INR will never be right and that I am on a merry-go-round that is going to eventually kill me. Will things ever balance out? has anyone else had problems with blood thinners?