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Penguin family  amruske wrote about 1 year ago

I had a DVT and PE in September which they attributed to gallbladder surgery and b.c pills. Hematologist ran some tests and didn't feel any issues and could come off in 6 months. They also put in an IVC filter since DVT was knee to groin. Was on std Xarelto 20mg/day when leg pain increased last week. Went to ER and ultrasound showed new clots in leg. Dr. said its unheard of to fail on Xarelto and is referring me to Mayo to try and understand why. My first INR was 4.8 so they are skipping a day of meds and cutting dose in 1/2. Any advice for a scared newbie

Category: Blood Clots

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Puppy sleep  lisazen - - posted about 1 year ago

Did they test you for anti cardiolipin? If you are clotting and therapeutic ( though not sure you were on Xarelto.. they should run a panel and check for antiphospholipid syndrome ( sp).
Warfarin is the drug of choice for it. so not treatment differences.. just nice to know.

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Penguin family  amruske - (16) - posted about 1 year ago

Yes, no genetic factors coming back. I just went to the Mayo Clinic which had a different opinion, they thought imaging showed same clots that had moved around but that technically I had not failed on Xarelto and formed new clots so now dealing with competing Dr. opinions

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Wolf  Pavan - - posted about 1 year ago

amruske sounds like you've been through a lot!

Xarelto is pretty new, so it's bound to not work for some people and work for others. There isn't a lot of history around Xarelto. I wouldn't take this too hard.

Reducing your warfarin dosage should lower your INR, as long as your vitamin k has stayed relatively stable.

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Penguin family  amruske - (16) - posted about 1 year ago

Thanks, had another test today and down to 3.1, can I assume this means it is working. That was always a worry with Xarelto not knowing if it was effective and told to not worry, it works for everyone.

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Wolf  Pavan - - posted about 1 year ago

Happy new year amruske!!!

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Wolf  Pavan - - posted about 1 year ago

Yeah that's frustrating.

It's strange that the doctor would say it works for everyone, because otherwise there wouldn't be such a strong push to make reversal agents for them.

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