Anyone else been diagnosed w/APS/Hughe's disease?
Cindy in nj wrote
over 2 years ago
Would like to compare notes. Hughe's because that is the MD who discovered it... Cindy from NJ, USA
Cindy in nj wrote
over 2 years ago
Would like to compare notes. Hughe's because that is the MD who discovered it... Cindy from NJ, USA
Hi Cindy, I also have Hughes syndrome and have had for the last 6years. Medical tests almost always came back negative. Things changed when I said for a consultation with the Master himself, Professor Hughes. Oh I forgot to mention my INR has to be between 3.0-4.0. I self test.
Reply to Lesjames57
Just saw you wrote a post about a DVTS. There is another site I don't know if you are familiar with specifically for Hughes patients: healthunlocked. Let me know what you think.
Reply to Cindy in nj