Anyone else been diagnosed w/APS/Hughe's disease?
Cindy in nj wrote
11 months ago
Would like to compare notes. Hughe's because that is the MD who discovered it... Cindy from NJ, USA
Cindy in nj wrote
11 months ago
Would like to compare notes. Hughe's because that is the MD who discovered it... Cindy from NJ, USA
Hi Cindy, I also have Hughes syndrome and have had for the last 6years. Medical tests almost always came back negative. Things changed when I said for a consultation with the Master himself, Professor Hughes. Oh I forgot to mention my INR has to be between 3.0-4.0. I self test.
Reply to Lesjames57
Just saw you wrote a post about a DVTS. There is another site I don't know if you are familiar with specifically for Hughes patients: healthunlocked. Let me know what you think.
Reply to Cindy in nj