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Puppy sleep2  Bette wrote 4 months ago

I was very happy to find this site! After experiencing a massive bi-lateral pulmonary emboli in 2014 that came "out of nowhere" it was discovered (through three separate extensive blood tests) that I have APS. I had a DVT after back surgery in 2001 and was in the hospital for three days. It was not until my PE that I was tested for APS. I started taking Xarelto, but there is no antidote as yet to control unexpected or accidental blood loss. My hematologist suggested that I start taking warfarin because there is an effective antidote. I have my INR checked regularly and have done well keeping it in line. I love greens and never knew how much I was supposed to take and was never told much about greens. I am very happy to have found this site that tells me how much I need to have...and being able to track it is WONDERFUL! The only downside of being on warfarin is that you have to be careful about how much vitamin K you have each week...but I know that things will be a lot easier now that I will now know the levels in the greens I do eat!! Thank you so much for this tracker (of many things)!!!

Category: Blood Clots

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Puppy sleep  Cindy in nj - (4) - posted 3 months ago

I too have APS. I made the mistake of trying to calculate every bite of food I put in my mouth...BIG mistake. My advice to you is to only adjust those foods high in vit k such as kale, spinach and mayonnaise ( as depending what oil your mayo is made with will decipher how much vit k it has) also you may want to avoid olive oil. Let your healthcare provider change your coumadin to your diet not vice versa. , wittycjt@aol.com where are you from?

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Puppy sleep2  Bette - (60) - posted 3 months ago

I have been doing pretty well with my INR levels. The Coumadin clinic that I go to does a good job of adjusting my warfarin levels. I was just glad to see something about vit k! I cook with olive oil and need to check that out! I am from Oakland, Maine. betterobjent@gmail.com

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Puppy sleep  Cindy in nj - (4) - posted 3 months ago

FYI I have also listed other sites that are great... tap on my name to see other posts

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Puppy sleep  Cindy in nj - (4) - posted 3 months ago

Peanut oil is very low, so is corn oil. Good to use to make homemade mayonnaise and other things things I find. I am in NJ. Check youtube then substitute the oil you want to use for mayo. Let me know... email me as I find it hard to find responses on here. Wittycjt@aol.com

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